with any disability is hard work, physically
draining and hard on the household finances.
rare diseases is even harder due to their
complex nature. On average, bringing up a
disabled child costs 50% more than raising
an able bodied child.
You have to fight for
everything; services, equipment, house adaptations
and appropriate specialist help. As ever in
these situations, it is left in the hands
of the charities and volunteers to act.
This is where Murray's
Muscles can help with your help.
Specialist equipment is necessary to retain
quality of life for people affected by muscle
disease. Most of this equipment is expensive
to the average family and, as yet, is not
available on the NHS. As we grow as a charity,
we are able to provide funding for more of
this sort of equipment which is so desperately
The items listed below
are by no means exhaustive, but you can see
how much a family will need to spend on essential
can help us – Any donation, no matter
how big or small will make a big difference
to someone’s life”.