| About MD | The Facts About Duchenne | Research |

About MD

There are more than 70,000 babies, children and adults living in the UK today who suffer from muscular dystrophy or a related muscle disease. That means that there are some 350,000 people (family, friends, carer's, etc) who are affected.

If you or one of your family is newly diagnosed, it might be of some help (at some stage) to know that you are not alone.

Lets be straight - a diagnosis of any disease is a huge shock and different people deal with it in different ways. There is no right or wrong way to deal with shock or grief.

But rest assured, there are people, living in your situation, who can help and support you.

The national body campaigning for all the muscle diseases is the Muscular Dystrophy Campaign - a wonderful bunch of people dedicated to helping you. Locally, there are people like us.....together, we are stronger!

Click here to learn more about the different types of Muscle Disease

The Facts about Duchenne

Duchenne muscular dystrophy (DMD) affects only boys (with extremely rare exceptions).

DMD is one of more than 20 different types of Muscular Dystrophy. All dystrophies are genetic disorders.

In 66% of cases the mother is the carrier of the disease. In the remaining percentage DMD occurs as a genetic mutation at conception and therefore can happen to anyone.

There is a 1 in 3500 chance of giving birth to a DMD Child.

There are approximately 11,500 prople across the Midlands who suffer from a form of muscular dystrophy.

DMD is the commonest and most aggressive form of Muscular Dystrophy.

2 boys are born and die with DMD every week in the UK.

There are about 1500 boys suffering with DMD living in the UK at any one time.

By about 8 to 11 years boys become wheelchair bound.

Life expectancy is very variable depending upon the individual and the management of the condition. It can range from teen'sto the mid 40's (this is a dramatic improvement on the previous 10 - 20 years).

Did you know that 95% of boys in any children's hospice have Duchenne Muscular Dystrophy.

Research

It would be totally pointless for me to spend my time reproducing the fantastic work of Muscular Dystrophy UK website and so, for the most up-to-date info on research into a potential treatment or cure go to:

http://www.musculardystrophyuk.org/progress-in-research/

 

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This page was last updated: 27 April 2015© 2015 MurraysMuscles